A response

This may be from lack of sleep, or maybe I misunderstood something but alas I am answering because hey this is my blog and I can.

Dear Anonymous,

I love comments on my blog, I really honestly do. But on my last posting something seems alittle off. You see I post things on my blog that I do not go around sharing with everyone else. Its my journal but open to the interpretation of others. Usually someone will leave a comment that is positive and encouraging...yours I will admit has left some questions in my mind. 

"You're lucky to be just 20 with MS." First off, lucky and MS do not belong in the same sentance...or at least not in my eyes. Ummm really, am I that lucky that I got it when I was 20. Because honestly, no I do not agree. At 20 I am still finding my place in this world, I am trying to plan my future, the last thing I needed was to be kicked 5 feet under the ground because of MS. I feel as though going through what I went through aged me 10 years. I am so high strung and uptight, that I am pretty sure all my tendencies act like a college student have flown out the window. 

The only drug I have been on is Tysabri, and yeah it has been good, but since I am a college student I am on my parents insurance. So my concern is when I am done with school next year and no longer covered by my parents insurance who is going to cover this wonder drug. I could relapse on this drug like any other drug, I am a firm believe that my cards have already been dealt, I got what I got, and now I deal with it. If another attack happens I deal, just like I have in the past. 

It would be wonderful to say that I will take Tysabri for my whole life, but PML is real, financial concerns are real. When your doctor explains that PML is a real risk I do not take that lightly, I will have no problems reevaluating Tysabri again and again. It has not been studied for long term use, so if PML increases as time goes on, I will gladdly consider going off of it. 

So once again, these are my views, I choose to share my experience with others, it was not a easy choice. If you did not post as anonymous I would have wrote a simple email response but alas you didnt so public posts it is.

Sincerely a kinda urked/overtired/over-emotional blogger.

I have a obsession

I have a obsession, that has is growing at a cont ant increasing rate...cd's...even with the invention of being able to buy music online, I will also stay true to cd's...

but because I used to be a math major and all, lets do some number crunching....

139 cds @ lets say 12 dollars...we all know some are more some are less...but that equals $1668...kinda crazy but I will keep buying them lol.

Oh so freakin tired...

Yesterday my mom and I, well actually just I, packed up the car and headed to Darien Lake...a 102 mile haul to see Coldplay. I haven't been so excited to actually sit through a long card ride with my mom since I saw Matt Nathanson a cool 3 hours away. You see my mom and I are on different wavelengths, we do not see eye to eye, but luckily the one thing we do share some similarities is with music. I will say though our conversations in the car lasted about 1/20 of the trip, but luckily I packed alot of cds to get us through.

When there are alot of people or cars and traffic my mom gets all panicky like we are going to be late. I on the other hand have adapted this weird mindset where I know that I planned this trip well and we have plenty of time to deal with traffic. So she freaks out when we are not moving and I hand her a sandwich and tell her to chill.

Well we made it right at 6, as the gates were opening up. We stood in a massively long long and slowed entered the gates. We found our seats which though weren't super close to the stage, they weren't too far either.

The concert was amazing, absolutely amazing. I had bought aisle seats and can I say oh-my-gosh half way during the show big security guards kept walking up and down our isle, barricading places off and the next thing you know they had tape right down our isle blocking any ones escape. But seriously Coldplay exists the stage and starts walking through the crowd down the marked off isles and well they walked right past me, we were seriously 1inch apart. I am not some crazy super fan so I refrained from grabbing Chris Martin like so many people did...but it was just so cool.

They played my favorite some, The Scientist, which gave my chills, its got to be one of my most favorite songs ever...

The disaster was exiting this place, we sat in our car for a good 1/2 hour- 45 minutes without moving. I was the lucky driver for the night as my moms night visions is not so good. By the time we started driving is was just before midnight. I am usually in bed at midnight so as my mom slept in the car I had the air conditioning blasting, the music loud and was singing aloud. 

By the time I got home I was wide awake...so I finally crashed around 3ish, woke up like 2 hours ago, and I completely, 100% a zombie.

I have random stuff to talk about but I may fall asleep here and having keyboard imprints on my forehead is not on my to-do list today.

-Oh yeah Chris Martin is in the pic above...thank you Dalboz17 from flicker for posting this, I did not get any good pictures...

A bit frustered...

Dear Wii Fit Creators,

Stop making my character bigger in size then she needs to be. Fine, whatever, go ahead and tell me that my bmi is a bit too high...I can deal with that...but don't expand the waist line of my character. 

Sincerly,

Your Very Frustrated Wii Fit User

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In better and happier news I am super excited because tonight I am going to see Coldplay, and I simply cannot wait. I wish they could play every song that they have made, but realistically I know that would never happen...I think I would die though if they played The Scientist because that song gives me chills every time.