Wednesday, January 27

Countdown to Charolette has begun!

I don't even know if I had mentioned this before but I am flying to Charlotte this Friday morning, and I couldn't be any more excited. My cousin and his wife are having a baby later this year, but their baby shower is Saturday. They got married when I was a junior in college and between my and my brothers schedule we were unable to go due to college stuff. My cousin is on my father side and my brother and I are the youngest by like a good 15+ years to our other cousins on that side, but I am soo stoked to see my cousin and his wife.

My mom is going with me, so we leave Friday morning and get back late Sunday night. It should be a fun weekend.

In other news...I have been feeling alot better...tired, but I am pretty sure thats to be expected. I also have started really eliminating all the junk in my diet. Back to the whole eating yogurt once a day, and an actual good breakfast, more fiber and a whole heck of alot more water (thanks to this very cute water bottle that I can drag around to me to class and not worry about it leaking in my bag). I had Zumba last night and I went with one of my roommates and OMG that is one crazy workout. It is a blast though, so I'll hit the gym tonight and tomorrow morning and then work one packing tomorrow.

I went to the Record Archive this morning and wandered around aimlessly. $5 used just cant go wrong. Its like 5 minutes away from my school so its perfect and I only have one class today so it was even more perfect. I had a gift certificate from one of my roommates for that store, so I got to use that up and some. I ended up with three cds: Cartel - Chroma & The Ransom [EP] , as well as Michelle Branch - Hotel Paper (I always liked her music but I just never committed to buying for $5 bucks it was well worth it).

Now I off to listen to some music and read some blogs...hope everyone is having a lovely Wednesday!

Monday, January 25

A bit late...but better that never...Tysabri #14

Last Friday I had my 14th Tysabri infusion. All went well, Steph and I were actually the only ones in the infusion room, which meant that we got the TV all to ourselves and could watch all the Wife Swap that we could handle.

Afterwards I felt pretty crappy, so we did a little shopping and went to dinner at a burger place called Five Guys Burger and Fries. All I can say is yummmmm. We rented Gamer...I have no idea why I picked that, but we both sat there and were just a bit confused at what was going on.

I still don't feel all that great but I can blame it on the weather, part of the day was about 54 degrees, and rainy...and it was like spring...but in the middle of winter. Sometimes CNY confuses me...

Ok, now back to read all the blogs I haven't read in a while...

Thursday, January 21

Why am I at all surprised?

I have earned the repuation from my family and friends as the girl who absolutly hates doctors. I usually do everything in my power to aviod going and when I have to go, I drag my feet the whole way.

So yesterday I went to the neurologist for my year check up appointment. Months ago I had to reschedule this appointment because of a time conflict and the secretary argued with me because it HAD to be with my neurologist...couldnt be with the R-NP. So yesterday I go with my list in hand of all my questions, thoughts and of course witty remarks written in the margins for my amusement.

I sat in the waiting room, listened to my iPod and ran through my list and suprise suprise, my doctor was on a teleconference to help pick a new MS president person (and frankly thats all fine and dandy and important but shouldn't patients come first...if it wasn't for patients there would be no doctors...maybe they missed that memo) and was very sorry but he wouldnt be able to see me today, but his R-NP could. So that just urked me a bit...because it HAD to be with my neurolgst, and let me tell you that I just HATE changes in scheduled plans. So, I went back with the R-NP, and don't get me wrong, she is a very nice woman, but she is not who I wanted or planed to see. Her and my doctor are complete opposites, they make a nice team but they are so very much polar opposite. So after the whole timed walking test we get back into a room and she tells me that she knows I am busy (if she would have asked, I didn't have any class that night so really there was no need to rush anything... after all thats why I picked that time) so she will just do a quick neuro check and then I would be on my way.

My neurologist spends lots of time with his a good 30-60 minutes and he will answer all your questions, well at least he does for me...there never is a rush and I like that.

Anyways, the R-NP continues to tell me how much I've changed since I first met her, and that she had NEVER seen spasms like mine and how they were the worst thing ever to see (like really...I didnt know that, cause they were a totall joy to have...ugh) and then she goes on to tell me about other patients and how theres were never that bad and blah blah blah. Then she gives me the whole, Tysabri has problems but usually not in your first year and so you shouldnt worry (*cough* *cough* *cough* I'm on my second year...not my first...thats why there are medical records). Then she asks how I am feeling and I go to pull out my list and start off and she just says "oh sounds like everything is going well..." (cuts me off mid sentance)...writes my MRI form up for April...writes a prescription for Ritalin (which was on my complaint list...but obviously I didnt get to that or any question/concern/comment). My appointment was a total of like 10 minutes, I actually paid the lowest parking charge ever, I didnt even know that a 3 dollar charge existed because I have never been out in less than a hour.

I was so upset when I left though...I totally cried on the way back to my dorm...I had to drive extra around the block so my eyes werent so puffy and red. I was just so mad and frustrated, because as much as someone looks at you and says "you look so good" that is just the outward one really realizes when I start clenching my fist together or clenching my toes because I can't control certain muscles from one notices the small things...but that doesn't mean they shouldn't let the patient talk.

So, I guess I am just throughly disappointed...I guess maybe I can save my list for July...totally, just totally lame. I do have Tysabri on Friday...I think Steph is tagging along as well so that should be fun (well the needle part is not fun...but dragging a friend to come is always kinda fun)...

Thursday, January 14

My Thursday Mission

So, I mighta sorta kinda dropped my History of Fashion class. Within five minutes of that class on Tuesday I was in full out panic mode, looking for the that big red stop button somewhere under the desk to just make time stop. The funny thing was that it was supposed to be a "fun" elective for me...well, ha ha ha, I was horribly wrong. It was the complete opposite...we were handed this syllabus and a giant packet of words that would be memorized (I'm sorry but I do not see why I need to know the formal definition for a corset, unless it is going to be showing up as a question at a bar trivia night). The packet was huge, the whole course was group work. OK, I am a senior and the class was almost all freshman/ just wasn't my cup of tea. So, I dropped it. It is funny how my stress just instantly dropped when I pushed the drop button online.

So now I have four classes, and sure, 12 credit hours could be sign of slackerism, but I love it. I get to work out in the mornings and just be calm. Sure, in a few weeks I will be scratching at the walls just itching for something to do.

Anyways, I seem to be distracted from my original reason for posting. My Thursday mission involved tweezers, my eyebrows and some good lighting as well as a mirror. It is pretty amazing how much my intention tremors (I believe that is the technical term...but don't quote me)stand out when I take a tweezers to such a small area. Obviously preciseness is key, but holy crapola it is hard. I mean it was never easy, but when your hand is bouncing up and down, exactness is certainly not easy. Anyways, I finally accomplished the task at hand, it took a while...but its just another thing to add to the "Reasons Why MS and I Do Not Get Along" List...maybe I'll make a copy for my doctor...I have my semi-annual visit next Wednesday. Which reminds me I need to start thinking of some great questions to ask. I am a bit nervous, I am going alone, because I am a stubborn, stubborn, 21 year old who thinks she can do anything and everything without any help or anyone to hold her hand. At least I can admit that...

So...fellow bloggers...I'm wondering what kind of questions are even supposed to be asked...maybe they are so obvious I am missing something. I have to start doing the whole proactive thing in this battle...I just don't know where to start...

Monday, January 11

Back to school...

Well today I start my first day of classes for my last semester of my undergrad degree. My schedule isnt my favorite...

M/W : Modern Art : 2:30 - 3:45
M : Advanced Computer Systems : 6 - 8:40

T/Th : History of Fashion : 10:35 - 12:-05
T : Entrepreneurship II : 6 - 8:40
Th: Elementary Statistics : 4 - 6:55

F : No classes

Ok, in the past I would have been jumping up and down at this schedule but I am not this semester. It's not like I sleep in super late, and I get up to go to the gym every morning and I am usually on a machine by 8:30. So...all this free time is one major plus. The downfall is that I am way more awake in the morning, so I guess I will start taking Ritalin again. I haven't taken it since I was student teaching in November. I would rather not take it but I think that is the only way I will be able to form complete, coherent and well thought out sentences.

I just can't believe I graduate in May...

Saturday, January 2

Hello 2010!

New Years resolutions...I always stick with mine for a few months (OK- a abit of a fib...sometimes I last a whole week)...anyways I figured if I was going to make any I should at least aim for ones that I can possibly attempt to complete. So here is my list of resoultions...

1. Obviously my first resoultion that is uncompletable is to get rid of my MS. Hey- A girl can wish can't she :-P

2. Lighten up - stop being so serious. I do some pretty crazy things and I say some pretty witty, sarcastic things and why should that be hidden by my oh so cold front? This I can so do, and intend on doing. My life has gone a bit off the beaten path, but it doesn't mean you can't laugh along the way back to the beaten path.

3. Attempt to be healthy...i.e- work out and stop eating junk 24/7...instead I am aiming to eat it 1/7...I think that makes sense...Remember folks I burned out as a math major after three semesters...fractions are not my strong suit!

Oh before I continue, I have a award! Its from the amazing Herrad. (If you don't follow her blog, you must! Click on her name and it will link ya to it). She is such a inspiration, and even when I am away from blogging I still always read hers everyday. So thank you so much Herrad for being such a active member of the MS blogging community and thank you for the award!

I could continue on with my list but I will refrain because uh I have a date tomorrow. Or at least I tried to convince myself it wasn't one but I am well aware that I am just fooling myself. Guy asks girl out to dinner and a movie. Guy makes all the plans. Girl quickly realizes it is a date and runs the other direction but fails to get out of it. So tomorrow I guess I am seeing Sherlock Holmes and eating dinner at an actual restaurant.

Well, until next time, goodnight bloggers.

Friday, January 1