This morning I signed up for my first MS event. Not going to lie, its the first one that I even bothered reading the email after I saw the heading, MS for the Newly Diagnosed.
I have been realizing that while I know what MS is, I don't honestly understand it enough to answer my friends questions enough, or really explain it to myself sometimes.The program topics include: "what happens in the body; understanding symptoms vs. exacerbations vs. pseudo-exacerbations; treatment options; myths and misconceptions; "but you look so good" - the invisible symptoms; and injection management."
When I was first diagnosed I had no idea what MS was, just that I was pretty certain that Montel Williams had it. My doctor told me right away not to go online and search about it and I didn't. I went back to school and avoided it. The few times I went online and searched I was always freaked out at the possible outcomes of this disease. I have witnessed what it has done to my own body, have read about what it has done to others through blogs and after reading all this through first hand accounts I think its time to start learning the ins and outs of this disease.
Maybe I'll be able to answer my friends questions better too, I feel like a bad represenation of MS sometimes when I can't even explain whats going on in my body or even whats going on with people with MS in general.